Mission
To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us.
Public Charity
SICKLE CELL CONSORTIUM INC
SICKLE CELL CONSORTIUM INC is a Public Charity headquartered in CUMMING, GA. Financial data from the 2024 filing: $1.4M revenue, $1.1M expenses, $418K total assets. 7 publicly reported grants to this organization, totaling roughly $137K, appear in IRS filings.
EIN: 474771677
CUMMING, GA
Alliances & Advocacy
NTEE: E01
Latest filing: 2024
Total Revenue$1.4M
Total Expenses$1.1M
Total Assets$418K
Grant Records7
Funding Total$137K
Filing Years2019–2024
Where $100 goes at Sickle Cell Consortium Inc
How Sickle Cell Consortium Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$95
Programs
the work itself
$5
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $95 for programs
$60
The Annual Warriors Convention is the premier patient-powered gathering in the sickle cell community
$26
The Leadership Summit is the primary meeting of the Sickle Cell Consortium (SC3)
$9
The Caregivers Summit provides a platform for caregivers to obtain support, education, encouragement, and community
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
SPONSORSHIP FOR ANNUAL WARRIORS CONVENTION
$8,000
RESEARCH- SUBCONTRACT
$35,000
SPONSORSHIP FOR SC3 ANNUAL WARRIORS CONVENTION
$5,000
SPONSORSHIP FOR SC3 ANNUAL WARRIORS CONVENTION
$5,000
RESEARCH- SUBCONTRACT
$30,000
Showing up to 5 of 7 total records — full history available with membership.
Officers & Directors
ADMINISTRATIVE DIRECTOR
Dominique Goodson
ASSOCIATE FINANCE DIRECTOR
Doris Bailey
DIRECTOR OF FINANCE
Eric Nti Frempong
EXECUTIVE DIRECTOR
Lakiea Bailey
PRESIDENT OF THE GENERAL ASSEMBLY
Mia Robinson
DIRECTOR OF RESEARCH
Raymona Holloway Lawrence
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.4M | $1.1M | $418K |
| 2023 | $918K | $1.0M | $124K |
| 2022 | $687K | $743K | $191K |
| 2020 | $348K | $244K | $104K |
| 2019 | $325K | $325K | — |
Between 2019 and 2024, reported annual revenue grew from $325K to $1.4M (+324%), with total assets most recently reported at $418K.
Interactive year-over-year charts and full filing details available with membership.