Public Charity

THE FTD DISORDERS REGISTRY LLC

THE FTD DISORDERS REGISTRY LLC is a Public Charity headquartered in KING OF PRUSSIA, PA. Financial data from the 2025 filing: $871K revenue, $893K expenses, $2.2M total assets. 16 publicly reported grants to this organization, totaling roughly $2.4M, appear in IRS filings.

EIN: 473601782 KING OF PRUSSIA, PA Latest filing: 2025
Total Revenue$871K
Total Expenses$893K
Total Assets$2.2M
Grant Records16
Funding Total$2.4M
Filing Years2019–2025

Mission

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Officers & Directors

REGISTRY DIRECTOR Carrie Milliard
DIRECTOR-BLUEFIELD MEMBER Laura Mitic
COO AND SECRETARY Mitch Appleson
PRESIDENT Penny Dacks
DIRECTOR-AFTD MEMBER REPRE Susan Dickinson

Officer compensation and complete director data available with membership.

Top Grant Purposes

FTD PATIENT REGISTRY
$987,374 5 grants
SUPPORT CHARITABLE PROGRAMS
$715,366 4 grants
FOR GENERAL PURPOSES
$295,000 4 grants
SUPPORT RESEARCH PROGRAM
$165,156 1 grant
Research
$150,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $871K $893K $2.2M
2024 $1.0M $955K $2.4M
2023 $1.6M $759K $2.0M
2020 $544K $748K $1.1M
2019 $762K $538K $1.3M

Between 2019 and 2025, reported annual revenue grew from $762K to $871K (+14%), with total assets most recently reported at $2.2M.

Interactive year-over-year charts and full filing details available with membership.

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