Public Charity

THE FTD DISORDERS REGISTRY LLC

THE FTD DISORDERS REGISTRY LLC is a Public Charity headquartered in KING OF PRUSSIA, PA. Financial data from the 2025 filing: $871K revenue, $893K expenses, $2.2M total assets. 16 publicly reported grants to this organization, totaling roughly $2.4M, appear in IRS filings.

EIN: 473601782 KING OF PRUSSIA, PA Alzheimers Disease NTEE: G83 Latest filing: 2025
Total Revenue$871K
Total Expenses$893K
Total Assets$2.2M
Grant Records16
Funding Total$2.4M
Filing Years2019–2025

Mission

THE REGISTRY'S MISSION IS TO FACILITATE RESEARCH AND ADVANCE RESEARCH TO ACCELERATE TREATMENT DEVELOPMENT FOR ALL TYPES OF FTD, A DEVASTATING NEURODEGENERATIVE DISEASE THAT STRIKES PEOPLE IN THE PRIME OF LIFE AND FOR WHICH, CURRENTLY, THERE IS NO CURE.

Where $100 goes at The Ftd Disorders Registry LLC

How The Ftd Disorders Registry LLC divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$84 Programs the work itself
$16 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $84 for programs

$84
The goals of the registry are to
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

REGISTRY DIRECTOR Carrie Milliard
DIRECTOR-BLUEFIELD MEMBER Laura Mitic
COO AND SECRETARY Mitch Appleson
PRESIDENT Penny Dacks
DIRECTOR-AFTD MEMBER REPRE Susan Dickinson

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$1,087,374 6 grants
General Support
$1,010,366 8 grants
Research & Policy
$315,156 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $871K $893K $2.2M
2024 $1.0M $955K $2.4M
2023 $1.6M $759K $2.0M
2020 $544K $748K $1.1M
2019 $762K $538K $1.3M

Between 2019 and 2025, reported annual revenue grew from $762K to $871K (+14%), with total assets most recently reported at $2.2M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for THE FTD DISORDERS REGISTRY LLC

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