Mission
ACCELERATING THE DEVELOPMENT OF ADVANCED DIAGNOSTIC TOOLS AND EFFECTIVE TREATMENTS FOR SYSTEMIC AMYLOIDOSIS THROUGH COLLABORATION AND INNOVATION.
Public Charity
AMYLOIDOSIS RESEARCH CONSORTIUM INC
AMYLOIDOSIS RESEARCH CONSORTIUM INC, of NEWTON, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $3.8M in revenue, $3.8M in expenses, $5.4M in total assets. 22 publicly reported grants to this organization, totaling roughly $477K, appear in IRS filings.
EIN: 472589708
NEWTON, MA
Specifically Named Diseases Research
NTEE: H80
Latest filing: 2025
Total Revenue$3.8M
Total Expenses$3.8M
Total Assets$5.4M
Grant Records22
Funding Total$477K
Filing Years2020–2025
Where $100 goes at Amyloidosis Research Consortium Inc
How Amyloidosis Research Consortium Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$76
Programs
the work itself
$10
Management
running the organization
$14
Fundraising
raising the next dollar
Inside the $76 for programs
$29
Awareness, educational programs and advocacy:arc's patient and healthcare professional programs educate physicians and tailor information to suit the patient's needs and are successfully matching them to better treatment…
$24
Research programs:arc has been working on a number of research initiatives including datasharing, and patient experience studies
$23
Healthcare professional education:arc has carried out research to understand the barriers and pathways to early diagnosis
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
PROGRAM SPECIFIC SUPPORT
$50,000
FOR RECIPIENT'S EXEMPT PURPOSE
$8,000
For grant recipient's exempt purposes
$7,700
JCF GRANTS FROM DAFS AND ENDOWMENTS
$6,500
PROGRAM SPECIFIC SUPPORT
$25,000
Showing up to 5 of 22 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Ashutosh Wechalekar
BOARD MEMBER
Dena Heath
BOARD MEMBER
Dr Raymond Comenzo
PRESIDENT/CEO & CLERK
Isabelle Lousada
TREASURER
Jason Shore
BOARD MEMBER
Kena Thompson
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.8M | $3.8M | $5.4M |
| 2024 | $3.4M | $3.0M | $4.7M |
| 2023 | $2.9M | $2.4M | $3.0M |
| 2022 | $2.3M | $2.1M | $2.5M |
| 2020 | $2.1M | $1.2M | $2.3M |
Between 2020 and 2025, reported annual revenue grew from $2.1M to $3.8M (+78%), with total assets most recently reported at $5.4M.
Interactive year-over-year charts and full filing details available with membership.