Small Public Charity

Spinal CSF Leak Foundation

Spinal CSF Leak Foundation is a Small Public Charity headquartered in Spokane, WA. Financial data from the 2025 filing: $118K revenue, $121K expenses, $353K total assets. 14 publicly reported grants to this organization, totaling roughly $193K, appear in IRS filings.

EIN: 471141080 Spokane, WA Latest filing: 2025
Total Revenue$118K
Total Expenses$121K
Total Assets$353K
Grant Records14
Funding Total$193K
Filing Years2020–2025

Mission

The Spinal CSF Leak Foundation is a 501(c)(3) nonprofit organization dedicated to reducing the suffering of any person affected by intracranial hypotension or spinal cerebrospinal fluid leak.

Officers & Directors

Secretary Aubrey Bolan
Director Cara Gady Church
Director Isaac Brodsky
Executive Dir. / Treasurer Jennifer Mackenzie
Director Jennifer Schoon Pt Dpt
President Jodi Ettenberg

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$74,136 4 grants
GENERAL SUPPORT
$44,822 5 grants
PROGRAM DEVELOPMENT
$25,000 1 grant
Unspecified
$17,719 1 grant
For grant recipient's exempt purposes
$16,050 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $118K $121K $353K
2024 $177K $154K $346K
2023 $158K $126K $319K
2021 $166K $100K $218K
2020 $135K $123K $152K

Between 2020 and 2025, reported annual revenue declined from $135K to $118K (-13%), with total assets most recently reported at $353K.

Interactive year-over-year charts and full filing details available with membership.

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