Public Charity

THE RYR-1 FOUNDATION

THE RYR-1 FOUNDATION is a Public Charity headquartered in PITTSBURGH, PA. Financial data from the 2024 filing: $682K revenue, $384K expenses, $2.7M total assets. 22 publicly reported grants to this organization, totaling roughly $682K, appear in IRS filings.

EIN: 471094057 PITTSBURGH, PA Latest filing: 2024
Total Revenue$682K
Total Expenses$384K
Total Assets$2.7M
Grant Records22
Funding Total$682K
Filing Years2019–2024

Mission

THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1-RELATED DISEASES THROUGH SUPPORTING RESEARCH, PROVIDING MEDICAL PROFESSIONAL EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.

Officers & Directors

SECRETARY Andrew Huseth
DIRECTOR Bryan Heft
DIRECTOR Courtney Woomer
DIRECTOR Donald Zack
DIRECTOR Emily Pedersen
BOARD VICE PRESIDENT AS OF MAY 2024 Jennifer Ryan

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$326,862 8 grants
TO SUPPORT SOCIAL HEALTH AND WELFARE
$261,856 1 grant
HEALTH
$39,750 5 grants
CHARITABLE DONATION
$21,088 3 grants
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $682K $384K $2.7M
2023 $600K $354K $2.4M
2022 $411K $536K $2.1M
2020 $394K $330K $2.0M
2019 $744K $349K $1.9M

Between 2019 and 2024, reported annual revenue declined from $744K to $682K (-8%), with total assets most recently reported at $2.7M.

Interactive year-over-year charts and full filing details available with membership.

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