Public Charity

Cure Sanfilippo Foundation

Cure Sanfilippo Foundation, of Columbia, SC, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $2.8M in revenue, $1.6M in expenses, $13.9M in total assets. 63 publicly reported grants to this organization, totaling roughly $1.7M, appear in IRS filings.

EIN: 464322131 Columbia, SC Latest filing: 2024
Total Revenue$2.8M
Total Expenses$1.6M
Total Assets$13.9M
Grant Records63
Funding Total$1.7M
Filing Years2019–2024

Mission

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Officers & Directors

Director Adam Shaywitz
Director Ben Von Wong
Chief Science Cara O'neill
Board Chair Daniel Fraley
Director Faith Mcangus
Exe Dir/Pres Glenn O'neill

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$753,776 16 grants
For grant recipient's exempt purposes
$245,781 9 grants
Unspecified
$208,718 2 grants
For recipient's exempt purpose
$101,000 1 grant
HEALTH
$74,227 6 grants

Financial Trends

Year Revenue Expenses Assets
2024 $2.8M $1.6M $13.9M
2023 $2.1M $1.3M $11.2M
2022 $2.7M $2.3M $9.6M
2020 $2.1M $3.1M $10.2M
2019 $1.3M $1.3M $10.7M

Between 2019 and 2024, reported annual revenue grew from $1.3M to $2.8M (+107%), with total assets most recently reported at $13.9M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for Cure Sanfilippo Foundation

Complete financials, all 63 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 498,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time