Public Charity

Cure Sanfilippo Foundation

Cure Sanfilippo Foundation, of Columbia, SC, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $2.8M in revenue, $1.6M in expenses, $13.9M in total assets. 69 publicly reported grants to this organization, totaling roughly $1.9M, appear in IRS filings.

EIN: 464322131 Columbia, SC Specifically Named Diseases Research NTEE: H80 Latest filing: 2024
Total Revenue$2.8M
Total Expenses$1.6M
Total Assets$13.9M
Grant Records69
Funding Total$1.9M
Filing Years2019–2024

Mission

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Where $100 goes at Cure Sanfilippo Foundation

How Cure Sanfilippo Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$86 Programs the work itself
$6 Management running the organization
$8 Fundraising raising the next dollar

Inside the $86 for programs

$86
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families…
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Adam Shaywitz
Director Ben Von Wong
Chief Science Cara O'neill
Board Chair Daniel Fraley
Director Faith Mcangus
Exe Dir/Pres Glenn O'neill

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,465,612 46 grants
Health & Medicine
$111,697 10 grants
Research & Policy
$61,067 5 grants
Religion & Spirituality
$15,000 1 grant
Education
$7,250 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $2.8M $1.6M $13.9M
2023 $2.1M $1.3M $11.2M
2022 $2.7M $2.3M $9.6M
2020 $2.1M $3.1M $10.2M
2019 $1.3M $1.3M $10.7M

Between 2019 and 2024, reported annual revenue grew from $1.3M to $2.8M (+107%), with total assets most recently reported at $13.9M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for Cure Sanfilippo Foundation

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