Public Charity

BARDET BIEDL SYNDROME FOUNDATION

BARDET BIEDL SYNDROME FOUNDATION, of West Chester, PA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2023 filing shows $373K in revenue, $172K in expenses, $416K in total assets. 7 publicly reported grants to this organization, totaling roughly $859K, appear in IRS filings.

EIN: 463343666 West Chester, PA Health Support NTEE: E60 Latest filing: 2023
Total Revenue$373K
Total Expenses$172K
Total Assets$416K
Grant Records7
Funding Total$859K
Filing Years2021–2023

Mission

Funding research for Bardet Biedl Syndrome

Officers & Directors

Vice-President Alex Ogeka
Treasurer Nathan Arnesen
President Timothy Ogden

Officer compensation and complete director data available with membership.

Top Grant Purposes

Human Services
$800,000 1 grant
Unrestricted
$34,359 3 grants
UNRESTRICTED
$24,226 3 grants

Financial Trends

Year Revenue Expenses Assets
2023 $373K $172K $416K
2021 $75K $46K $226K

Between 2021 and 2023, reported annual revenue grew from $75K to $373K (+399%), with total assets most recently reported at $416K.

Interactive year-over-year charts and full filing details available with membership.

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