KOOLEN-DE VRIES SYNDROME FOUNDATION is a Public Charity headquartered in WILMINGTON, NC. Financial data from the 2025 filing: $381K revenue, $220K expenses, $735K total assets. 11 publicly reported grants to this organization, totaling roughly $94K, appear in IRS filings.
THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.
How Koolen-De Vries Syndrome Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Showing up to 5 of 11 total records — full history available with membership.
Officer compensation and complete director data available with membership.
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $381K | $220K | $735K |
| 2024 | $263K | $270K | $574K |
| 2023 | $306K | $325K | $581K |
| 2022 | $237K | $42K | $600K |
| 2020 | $154K | $38K | $290K |
Between 2020 and 2025, reported annual revenue grew from $154K to $381K (+147%), with total assets most recently reported at $735K.
Interactive year-over-year charts and full filing details available with membership.
