KOOLEN-DE VRIES SYNDROME FOUNDATION is a Public Charity headquartered in WILMINGTON, NC. Financial data from the 2024 filing: $263K revenue, $270K expenses, $574K total assets. 10 publicly reported grants to this organization, totaling roughly $94K, appear in IRS filings.
THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.
Showing up to 5 of 10 total records — full history available with membership.
Officer compensation and complete director data available with membership.
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $263K | $270K | $574K |
| 2023 | $306K | $325K | $581K |
| 2022 | $237K | $42K | $600K |
| 2020 | $154K | $38K | $290K |
| 2019 | $214K | $162K | $156K |
Between 2019 and 2024, reported annual revenue grew from $214K to $263K (+23%), with total assets most recently reported at $574K.
Interactive year-over-year charts and full filing details available with membership.
