Mission
TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS
Public Charity
DOWN SYNDROME DIAGNOSIS NETWORK
DOWN SYNDROME DIAGNOSIS NETWORK, of STILLWATER, MN, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $583K in revenue, $633K in expenses, $549K in total assets. 27 publicly reported grants to this organization, totaling roughly $1.6M, appear in IRS filings.
EIN: 463042112
STILLWATER, MN
Down Syndrome
NTEE: G25
Latest filing: 2025
Total Revenue$583K
Total Expenses$633K
Total Assets$549K
Grant Records27
Funding Total$1.6M
Filing Years2021–2025
Where $100 goes at Down Syndrome Diagnosis Network
How Down Syndrome Diagnosis Network divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.
$70
Programs
the work itself
$17
Management
running the organization
$13
Fundraising
raising the next dollar
Inside the $70 for programs
$24
Connect
$23
Inform
$23
Support
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$10,954
UNRESTRICTED
$148,900
GENERAL SUPPORT
$68,317
GENERAL SUPPORT
$35,985
For grant recipient's exempt purposes
$21,939
Showing up to 5 of 27 total records — full history available with membership.
Officers & Directors
TREASURER
Anna Yen Kim
DIRECTOR
Ben Hughes
DIRECTOR
Cassandra Drake
DIRECTOR
Jennifer Dingman
DIRECTOR
Jenny Di Benedetto
PRESIDENT
Kathleen Seitz
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $583K | $633K | $549K |
| 2024 | $562K | $619K | $628K |
| 2023 | $636K | $576K | $701K |
| 2022 | $500K | $506K | $644K |
| 2021 | $423K | $424K | $634K |
Between 2021 and 2025, reported annual revenue grew from $423K to $583K (+38%), with total assets most recently reported at $549K.
Interactive year-over-year charts and full filing details available with membership.