Mission
PROVIDE FUNDING TO RARE DISEASE RESEARCH AND SUPPORT AFFECTED FAMILIES
Public Charity
CURE LBSL
CURE LBSL is a nonprofit organization categorized as Public Charity based in Arlington, VA. Its most recent IRS filing (2025) reports revenue of $652K, expenses of $307K, total assets of $1.3M. Imperigo tracks 11 reported grant relationships connected to this organization totaling approximately $929K.
EIN: 462829156
Arlington, VA
Fund Raising & Fund Distribution
NTEE: G12
Latest filing: 2025
Total Revenue$652K
Total Expenses$307K
Total Assets$1.3M
Grant Records11
Funding Total$929K
Filing Years2021–2025
Where $100 goes at Cure Lbsl
How Cure Lbsl divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$98
Programs
the work itself
$2
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $98 for programs
$68
Cure Lbsl's primary mission is to fund critical research into Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation (LBSL), a rare genetic leukodystrophy
$30
Cure Lbsl conducted an Externally-Led Patient Focused Drug Development meeting on August 1, 2025
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$500,000
$250,000
UNRESTRICTED
$23,871
UNRESTRICTED
$26,368
Showing up to 5 of 11 total records — full history available with membership.
Officers & Directors
DIRECTOR
Chris Gulugian
DIRECTOR
Edward Blakely
BOARD CHAIR
Elizabeth Gulugian
DIRECTOR
Elizabeth Mcginn
DIRECTOR
Lance Stern
DIRECTOR
Megan Mitchell
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $652K | $307K | $1.3M |
| 2024 | $1.1M | $845K | $956K |
| 2023 | $1.9M | $1.7M | $739K |
| 2022 | $1.4M | $1.3M | $535K |
| 2021 | $599K | $415K | $445K |
Between 2021 and 2025, reported annual revenue grew from $599K to $652K (+9%), with total assets most recently reported at $1.3M.
Interactive year-over-year charts and full filing details available with membership.