Small Public Charity

RARE TRAIT HOPE FUND

RARE TRAIT HOPE FUND is a nonprofit organization categorized as Small Public Charity based in Belle Chasse, LA. Its most recent IRS filing (2024) reports revenue of $104K, expenses of $94K, total assets of $56K. Imperigo tracks 12 reported grant relationships connected to this organization totaling approximately $318K.

EIN: 462762646 Belle Chasse, LA Fund Raising & Fund Distribution NTEE: H12 Latest filing: 2024
Total Revenue$104K
Total Expenses$94K
Total Assets$56K
Grant Records12
Funding Total$318K
Filing Years2020–2024

Mission

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Where $100 goes at Rare Trait Hope Fund

How Rare Trait Hope Fund divides every $100 it spends, from its own Form 990-EZ filings, averaged across 4 years.

$100 Programs the work itself
<$1 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $100 for programs

$57
AGA drug product vector safety and toxicology study per task order 1, agreement #AGR00026049 signed October 17, 2022
57% of program spending
$43
Per FDA feedback from pre-IND meeting in 2018, gene therapy product production is complete
43% of program spending
<$1
Setting up AGU patient registry
0% of program spending
Share on LinkedIn Share on Facebook
Add this to your website

Source: Form 990-EZ filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Medical Director Alla Comardelle
Director Emily Moran
Director Erik Heywood
Secretary, Treasure Guzel Bilyalova
Director Jody Taravella
President, Executive Director Julia Taravella

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$300,664 9 grants
Health & Medicine
$10,000 1 grant
Unspecified
$6,857 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $104K $94K $56K
2023 $74K $222K $26K
2022 $261K $627K $174K
2020 $78K $262 $203K

Between 2020 and 2024, reported annual revenue grew from $78K to $104K (+32%), with total assets most recently reported at $56K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for RARE TRAIT HOPE FUND

Complete financials, all 12 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time