Public Charity

LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC

Based in FAIRFAX, VA, LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC operates as a Public Charity. The organization reported $3.6M in revenue, $3.1M in expenses, $2.5M in total assets for fiscal year 2025.

EIN: 455312680 FAIRFAX, VA Specifically Named Diseases Research NTEE: H80 Latest filing: 2025
Total Revenue$3.6M
Total Expenses$3.1M
Total Assets$2.5M
Grant Records0
Filing Years2021–2025

Mission

THE MISSION OF THE LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER (LDRTC) IS TO IMPROVE THE DIAGNOSIS, TREATMENT, AND UNDERSTANDING OF LYSOSOMAL AND OTHER RARE GENETIC DISORDERS BY CONDUCTING SCIENTIFIC RESEARCH, ADVANCING TRANSLATIONAL MEDICINE, EDUCATING HEALTHCARE PROFESSIONALS AND PATIENTS, AND PROMOTING THE DEVELOPMENT OF INNOVATIVE THERAPIES.

Where $100 goes at Lysosomal and Rare Disorders Research and Treatment Center Inc

How Lysosomal and Rare Disorders Research and Treatment Center Inc divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.

$92 Programs the work itself
$8 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $92 for programs

$77
Industry-sponsored clinical research
84% of program spending
$15
Scientific, professional, and patient education
16% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

SECRETARY / LPN (THRU OCTOBER) Bobby Sandhu
PRESIDENT Dr Ozlem Goker-Alpan
DIRECTOR / MANAGER (THRU OCTOBER) Lauren Noll
TREASURER / OPERATIONS DIRECTOR Uyensa Beese

Officer compensation and complete director data available with membership.

Financial Trends

Year Revenue Expenses Assets
2025 $3.6M $3.1M $2.5M
2024 $4.4M $3.7M $2.4M
2023 $3.4M $3.7M $1.9M
2022 $3.0M $2.5M $2.1M
2021 $2.7M $2.1M $1.6M

Between 2021 and 2025, reported annual revenue grew from $2.7M to $3.6M (+36%), with total assets most recently reported at $2.5M.

Interactive year-over-year charts and full filing details available with membership.

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