Public Charity

LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC

Based in FAIRFAX, VA, LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC operates as a Public Charity. The organization reported $4.4M in revenue, $3.7M in expenses, $2.4M in total assets for fiscal year 2024.

EIN: 455312680 FAIRFAX, VA Specifically Named Diseases Research NTEE: H80 Latest filing: 2024
Total Revenue$4.4M
Total Expenses$3.7M
Total Assets$2.4M
Grant Records0
Filing Years2020–2024

Mission

LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC'S (LDRTC) MISSION IS TO PROVIDE RESEARCH TO UNRAVEL UNDERLYING DISEASE-CAUSING MECHANISMS, DISCOVER NEW BIOMARKERS AND EXPLORE NEW THERAPEUTIC PATHWAYS AND TREATMENT OPTIONS. FURTHER, LDRTC WORKS TO EDUCATE PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND RESEARCHERS IN THE FIELD. FINALLY, IT PROVIDES TREATMENT AND CLINICAL CARE TO PERSONS SUFFERING FROM LYSOSOMAL AND OTHER RARE DISEASES.

Officers & Directors

SECRETARY / LPN Bobby Sandhu
PRESIDENT / FOUNDER Dr Ozlem Goker-Alpan
DIRECTOR / MANAGER Lauren Noll
DIR. OF TRANSLATIONAL RESEARCH Margarita Ivanova
TREASURER / OPERATIONS DIRECTOR Uyensa Beese

Officer compensation and complete director data available with membership.

Financial Trends

Year Revenue Expenses Assets
2024 $4.4M $3.7M $2.4M
2023 $3.4M $3.7M $1.9M
2022 $3.0M $2.5M $2.1M
2021 $2.7M $2.1M $1.6M
2020 $1.9M $2.2M $834K

Between 2020 and 2024, reported annual revenue grew from $1.9M to $4.4M (+129%), with total assets most recently reported at $2.4M.

Interactive year-over-year charts and full filing details available with membership.

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