Public Charity

CADASIL ASSOCIATION

CADASIL ASSOCIATION is a Public Charity headquartered in EDINA, MN. Financial data from the 2025 filing: $257K revenue, $107K expenses, $394K total assets. 7 publicly reported grants to this organization, totaling roughly $437K, appear in IRS filings.

EIN: 455242623 EDINA, MN Specifically Named Diseases NTEE: G80 Latest filing: 2025
Total Revenue$257K
Total Expenses$107K
Total Assets$394K
Grant Records7
Funding Total$437K
Filing Years2021–2025

Mission

THE MISSION OF CURECADASIL IS TO RAISE AWARENESS OF CADASIL, ENSURING IT WILL BE UNIVERSALLY RECOGNIZED AND UNDERSTOOD BY THE MEDICAL COMMUNITY, ENABLING PATIENTS TO BE CORRECTLY DIAGNOSED. WE ARE DEDICATED TO HELPING ALL TOUCHED BY CADASIL,IMPROVING EDUCATION AVAILABLE ON CADASIL AND PROMOTE AND SUPPORT RESEARCH FOR THIS RARE DISEASE

Where $100 goes at Cadasil Association

How Cadasil Association divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$89 Programs the work itself
$10 Management running the organization
$1 Fundraising raising the next dollar

Inside the $89 for programs

$89
Cadasil is an hereditary small vessel disease caused by mutations in the notch3 gene
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

PRESIDENT Bertram Kasiske
TREASURER Cheryl Gibson
PAST PRES/SC Jane Gunther
TRUSTEE Kathy Siegel
SECRETARY Pedro De Lencastre
TRUSTEE Vinita Bahl

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$400,000 2 grants
General Support
$26,390 3 grants
Unspecified
$10,134 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $257K $107K $394K
2024 $150K $177K $244K
2023 $50K $118K $271K
2022 $257K $29K $340K
2021 $36K $23K $114K

Between 2021 and 2025, reported annual revenue grew from $36K to $257K (+614%), with total assets most recently reported at $394K.

Interactive year-over-year charts and full filing details available with membership.

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