Public Charity

HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC

HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC, of LIVONIA, MI, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $416K in revenue, $349K in expenses, $452K in total assets. 7 publicly reported grants to this organization, totaling roughly $206K, appear in IRS filings.

EIN: 454955538 LIVONIA, MI Latest filing: 2024
Total Revenue$416K
Total Expenses$349K
Total Assets$452K
Grant Records7
Funding Total$206K
Filing Years2019–2024

Mission

THE HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA IS A NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES.

Sample Grants Received

2024
GENERAL SUPPORT
$5,742
2023
For grant recipient's exempt purposes
$50,000
$5,210
2021
For grant recipient's exempt purposes
$45,000
2021
For grant recipient's exempt purposes
$45,000

Showing up to 5 of 7 total records — full history available with membership.

Officers & Directors

CHAIR Ariana Pullin
BOARD MEMBER Ashley Clarke
BOARD MEMBER Clare Braithwaite
BOARD MEMBER Dr Bonnie Hennig-Trestment
BOARD MEMBER Dr Katherine Mcdonell
VICE CHAIR, INTERIM SECRETARY Dr Kelly Atkins

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$185,000 4 grants
GENERAL SUPPORT
$10,952 2 grants
SEED FUND GRANT
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $416K $349K $452K
2023 $430K $298K $384K
2022 $221K $230K $252K
2020 $455K $299K $237K
2019 $362K $338K $81K

Between 2019 and 2024, reported annual revenue grew from $362K to $416K (+15%), with total assets most recently reported at $452K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA INC

Complete financials, all 7 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 498,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time