Public Charity

The Familial Hypercholesterolemia Foundation

The Familial Hypercholesterolemia Foundation is a Public Charity headquartered in Fernandina Beach, FL. Financial data from the 2024 filing: $8.9M revenue, $7.8M expenses, $7.4M total assets. 22 publicly reported grants to this organization, totaling roughly $1.3M, appear in IRS filings.

EIN: 454597425 Fernandina Beach, FL Latest filing: 2024
Total Revenue$8.9M
Total Expenses$7.8M
Total Assets$7.4M
Grant Records22
Funding Total$1.3M
Filing Years2019–2024

Mission

The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.

Sample Grants Received

FIDELITY INVESTMENTS CHARITABLE GIFT FUND
2024
For grant recipient's exempt purposes
$51,700
$5,510
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
2023
For grant recipient's exempt purposes
$102,650
Northwestern University
2023
Support of research activities
$27,125
$14,304

Showing up to 5 of 22 total records — full history available with membership.

Officers & Directors

VP of Operations Allison Hawke
Treasurer Allison Jamison
Sr. Healthcare Data Analyst Barbara Gladders
Board Member Brian Mittman
Board Member Courtney Riley
VP of Science and Research Diane Macdougall

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$904,750 8 grants
Research
$99,614 3 grants
HEALTH
$90,500 2 grants
Unrestricted
$44,304 1 grant
GENERAL CONTRIBUTION
$27,500 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $8.9M $7.8M $7.4M
2023 $6.5M $6.4M $5.3M
2022 $2.8M $4.7M $4.5M
2020 $3.8M $3.1M $4.4M
2019 $3.5M $5.0M $3.6M

Between 2019 and 2024, reported annual revenue grew from $3.5M to $8.9M (+157%), with total assets most recently reported at $7.4M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for The Familial Hypercholesterolemia Foundation

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