Public Charity

The Familial Hypercholesterolemia Foundation

The Familial Hypercholesterolemia Foundation is a Public Charity headquartered in Fernandina Beach, FL. Financial data from the 2025 filing: $10.7M revenue, $8.9M expenses, $8.7M total assets. 25 publicly reported grants to this organization, totaling roughly $1.4M, appear in IRS filings.

EIN: 454597425 Fernandina Beach, FL Fund Raising & Fund Distribution NTEE: G12 Latest filing: 2025
Total Revenue$10.7M
Total Expenses$8.9M
Total Assets$8.7M
Grant Records25
Funding Total$1.4M
Filing Years2020–2025

Mission

The mission of the Family Heart Foundation is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health.

Where $100 goes at The Familial Hypercholesterolemia Foundation

How The Familial Hypercholesterolemia Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$86 Programs the work itself
$10 Management running the organization
$4 Fundraising raising the next dollar

Inside the $86 for programs

$33
EDUCATION
38% of program spending
$28
RESEARCH
33% of program spending
$25
ADVOCACY
29% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

VP of Operations Allison Hawke
Vice President & Treasurer Allison Jamison
Board Member Brian Mittman
Board Member Courtney Riley
VP of Science and Research Diane Macdougall
Chief Innovation Officer Hilliard Paige

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$999,124 15 grants
Research & Policy
$280,712 6 grants
Health & Medicine
$115,500 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $10.7M $8.9M $8.7M
2024 $8.9M $7.8M $7.4M
2023 $6.5M $6.4M $5.3M
2022 $2.8M $4.7M $4.5M
2020 $3.8M $3.1M $4.4M

Between 2020 and 2025, reported annual revenue grew from $3.8M to $10.7M (+185%), with total assets most recently reported at $8.7M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for The Familial Hypercholesterolemia Foundation

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