Public Charity

PCDH19 ALLIANCE

Based in NOVATO, CA, PCDH19 ALLIANCE operates as a Public Charity. The organization reported $285K in revenue, $48K in expenses, $279K in total assets for fiscal year 2024.

EIN: 454020102 NOVATO, CA Public Foundations NTEE: T30 Latest filing: 2024
Total Revenue$285K
Total Expenses$48K
Total Assets$279K
Grants Given0
Filing Years2019–2024

Mission

OUR MISSION IS TO IMPROVE THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY PCDH19 EPILEPSY. THE PCDH19 ALLIANCE FOCUSES ON RAISING AND DIRECTING FUNDS TO SCIENTIFIC RESEARCH WITH THE GOAL OF FINDING BETTER, MORE EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE'RE ALSO HERE TO PROVIDE INFORMATION AND SUPPORT TO AFFECTED FAMILIES, ASSIST RESEARCH EFFORTS AND ENSURE THAT NO FAMILY SUFFERS WITHOUT A DIAGNOSIS & THE BEST MEDICAL TREATMENT.

Officers & Directors

TREASURER Christine Rollins
BOARD MEMBER Heather Fryman
BOARD SECRETARY Jennifer Hendrix Holland
BOARD PRESIDENT Julie Walters
BOARD VICE PRESIDENT Karin Wells-Kilpatrick

Officer compensation and complete director data available with membership.

Financial Trends

Year Revenue Expenses Assets
2024 $285K $48K $279K
2023 $42K $108K $42K
2022 $42K $39K $107K
2020 $74K $20K $156K
2019 $97K $99K $102K

Between 2019 and 2024, reported annual revenue grew from $97K to $285K (+194%), with total assets most recently reported at $279K.

Interactive year-over-year charts and full filing details available with membership.

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