Mission
The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.
Public Charity
Cystic Fibrosis Research Fund Inc
Cystic Fibrosis Research Fund Inc is a Public Charity headquartered in Ardmore, PA. Financial data from the 2025 filing: $3.0M revenue, $2.8M expenses, $5.6M total assets. 76 publicly reported grants to this organization, totaling roughly $3.3M, appear in IRS filings.
EIN: 453768161
Ardmore, PA
Birth Defects & Genetic Diseases
NTEE: G20
Latest filing: 2025
Total Revenue$3.0M
Total Expenses$2.8M
Total Assets$5.6M
Grant Records76
Funding Total$3.3M
Filing Years2021–2025
Where $100 goes at Cystic Fibrosis Research Fund Inc
How Cystic Fibrosis Research Fund Inc divides every $100 it spends, from its own Form 990 filings, averaged across 10 years.
$85
Programs
the work itself
$6
Management
running the organization
$9
Fundraising
raising the next dollar
Inside the $85 for programs
$85
The organization raises money for cystic fibrosis research through direct solicitation activities
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$10,000
GENERAL SUPPORT
$1,294,084
$85,000
GENERAL
$65,239
MEDICAL RESEARCH
$54,300
Showing up to 5 of 76 total records — full history available with membership.
Officers & Directors
Director
Beth Shapiro Lavin
Director
Coby Kramer Golinkoff
Director
Danielle Selber
Director
Doug Young
Secretary
Elizabeth Kramer
Director
Emily Kramer Golinkoff
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.0M | $2.8M | $5.6M |
| 2024 | $3.5M | $3.0M | $6.0M |
| 2023 | $2.8M | $2.1M | $5.0M |
| 2022 | $1.8M | $2.0M | $4.2M |
| 2021 | $2.1M | $944K | $4.4M |
Between 2021 and 2025, reported annual revenue grew from $2.1M to $3.0M (+45%), with total assets most recently reported at $5.6M.
Interactive year-over-year charts and full filing details available with membership.