Small Public Charity

Rare Genomics Institute Inc

Rare Genomics Institute Inc is a nonprofit organization categorized as Small Public Charity based in San Mateo, CA. Its most recent IRS filing (2018) reports revenue of $55K, expenses of $64K, total assets of $70K. Imperigo tracks 3 reported grant relationships connected to this organization totaling approximately $48K.

EIN: 453624709 San Mateo, CA Alliances & Advocacy NTEE: G01 Latest filing: 2018
Total Revenue$55K
Total Expenses$64K
Total Assets$70K
Grant Records3
Funding Total$48K
Filing Years2018

Mission

SUPPORT UNDIAGNOSED AND RARE DISEASE PATIENTS AND FAMIL

Where $100 goes at Rare Genomics Institute Inc

How Rare Genomics Institute Inc divides every $100 it spends, from its own Form 990-EZ filings.

$100 Programs the work itself
<$1 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $100 for programs

$80
Patient advocacy team once a family applies to rgi for assistance with genome testing they are assigned a patient advocate who will work with them throughout the entire…
80% of program spending
$13
Rare Genomics Task Force helps answers scientific inquiries and performs research for rare disease families Rare Genomics Patient Research Services help perform bioinformatics analysis and genomic interpretation of…
13% of program spending
$7
Rareshare online social network for patients families healthcare professionals and others affected by rare disease we have over 1000 different rare disease communities with over 8000 members rareshare…
7% of program spending · Reported in the filing: 8,000 members
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2018. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Hugh Rienhoff
Director Imran Babar
Chairman CEO Jimmy Lin
Director Joe Beery
COO Romina Ortiz

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$30,000 1 grant
General Support
$8,245 1 grant
Unspecified
$10,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2018 $55K $64K $70K

Interactive year-over-year charts and full filing details available with membership.

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