Public Charity

Li Fraumeni Syndrome Association Inc

Li Fraumeni Syndrome Association Inc, of Holliston, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $278K in revenue, $276K in expenses, $114K in total assets. 16 publicly reported grants to this organization, totaling roughly $848K, appear in IRS filings.

EIN: 452284811 Holliston, MA Latest filing: 2024
Total Revenue$278K
Total Expenses$276K
Total Assets$114K
Grant Records16
Funding Total$848K
Filing Years2018–2024

Mission

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Officers & Directors

Dev. Director Deb Soprano
Secretary Erica Kirschner
Comm. Gina Vild
Vice President Holly Fraumeni
President/Co- Founder Jennifer Perry
Educ. & Aware. Kathy Higgins

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$615,000 2 grants
For grant recipient's exempt purposes
$152,500 7 grants
HEALTH
$41,300 3 grants
MEDICAL RESEARCH
$15,000 2 grants
Unrestricted
$14,808 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $278K $276K $114K
2022 $380K
2020 $605K $180K $452K
2019 $174K $185K $18K
2018 $309K $636K $29K

Between 2018 and 2024, reported annual revenue declined from $309K to $278K (-10%), with total assets most recently reported at $114K.

Interactive year-over-year charts and full filing details available with membership.

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