Public Charity

GLUT1 Deficiency Foundation Inc

GLUT1 Deficiency Foundation Inc is a nonprofit organization categorized as Public Charity based in Owingsville, KY. Its most recent IRS filing (2025) reports revenue of $505K, expenses of $484K, total assets of $358K. Imperigo tracks 28 reported grant relationships connected to this organization totaling approximately $895K.

EIN: 452190535 Owingsville, KY Latest filing: 2025
Total Revenue$505K
Total Expenses$484K
Total Assets$358K
Grant Records28
Funding Total$895K
Filing Years2021–2025

Mission

The GLUT1 Deficiency Foundation is a parent-led patient advocacy organizatino dedicated to bringing help and hope to the GLUT1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Officers & Directors

Director April Breen
Treasurer Debbie Stoddard
Director Erin Meisner
Executive Director Glenna Steele
Vice President Kelly Jones
Secretary Leigh Hopkins

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$615,000 2 grants
GENERAL FUND
$113,314 7 grants
GENERAL SUPPORT
$58,894 8 grants
DISEASE/DISORDER
$35,000 1 grant
General Charitable Contributions
$20,150 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $505K $484K $358K
2024 $515K $609K $366K
2023 $340K $360K $466K
2022 $777K $612K $448K
2021 $452K $346K $402K

Between 2021 and 2025, reported annual revenue grew from $452K to $505K (+12%), with total assets most recently reported at $358K.

Interactive year-over-year charts and full filing details available with membership.

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