Public Charity

SHWACHMAN-DIAMOND SYNDROME FOUNDATION

SHWACHMAN-DIAMOND SYNDROME FOUNDATION is a Public Charity headquartered in VAN WYCK, SC. Financial data from the 2025 filing: $88K revenue, $102K expenses, $194K total assets. 6 publicly reported grants to this organization, totaling roughly $92K, appear in IRS filings.

EIN: 431709945 VAN WYCK, SC Centers to Support the Independence of Specific Populations NTEE: P80 Latest filing: 2025
Total Revenue$88K
Total Expenses$102K
Total Assets$194K
Grant Records6
Funding Total$92K
Filing Years2021–2025

Mission

RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.

Officers & Directors

Vice President Christian Del Re
Secretary Deana Valiante
FOUNDER Joan Mowery
Treasurer John Wall
President Mary Balint

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$34,679 1 grant
UNRESTRICTED
$29,757 2 grants
For grant recipient's exempt purposes
$21,000 2 grants
General Support
$6,380 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $88K $102K $194K
2024 $84K $139K $207K
2023 $65K $47K $269K
2022 $66K $146K $245K
2021 $192K $36K $358K

Between 2021 and 2025, reported annual revenue declined from $192K to $88K (-54%), with total assets most recently reported at $194K.

Interactive year-over-year charts and full filing details available with membership.

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