Small Public Charity

SOTOS SYNDROME SUPPORT ASSOCIATION

SOTOS SYNDROME SUPPORT ASSOCIATION, of WHEATON, IL, is a Small Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $120K in revenue, $116K in expenses, $229K in total assets. 9 publicly reported grants to this organization, totaling roughly $76K, appear in IRS filings.

EIN: 431568496 WHEATON, IL Latest filing: 2024
Total Revenue$120K
Total Expenses$116K
Total Assets$229K
Grant Records9
Funding Total$76K
Filing Years2020–2024

Mission

SUPPORT AND EDUCATION FOR SOTOS SYNDROME FAMILIES

Officers & Directors

VICE PRESIDE Brian Hays
VICE PRESIDE Deja Cruz
DIRECTOR Desray Reeb
SECRETARY Kayla Seif
DIRECTOR Linnea Dugan
TREASURER Michele Marshal

Officer compensation and complete director data available with membership.

Top Grant Purposes

HEALTH
$41,500 5 grants
Unrestricted
$26,942 3 grants
UNRESTRICTED
$7,967 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $120K $116K $229K
2023 $64K $98K $226K
2022 $25K $14K $259K
2021 $36K $5K $248K
2020 $31K $4K $217K

Between 2020 and 2024, reported annual revenue grew from $31K to $120K (+282%), with total assets most recently reported at $229K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for SOTOS SYNDROME SUPPORT ASSOCIATION

Complete financials, all 9 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 498,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time