Mission
TO ENHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME.
Public Charity
PRADER-WILLI SYNDROME ASSOCIATION (USA)
PRADER-WILLI SYNDROME ASSOCIATION (USA) is a Public Charity headquartered in BRANDON, FL. Financial data from the 2025 filing: $3.0M revenue, $2.7M expenses, $3.6M total assets. 69 publicly reported grants to this organization, totaling roughly $2.1M, appear in IRS filings.
EIN: 411306908
BRANDON, FL
Latest filing: 2025
Total Revenue$3.0M
Total Expenses$2.7M
Total Assets$3.6M
Grant Records69
Funding Total$2.1M
Filing Years2021–2025
Where $100 goes at Prader-Willi Syndrome Association (USA)
How Prader-Willi Syndrome Association (USA) divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$76
Programs
the work itself
$13
Management
running the organization
$11
Fundraising
raising the next dollar
Inside the $76 for programs
$29
National convention and miscellaneous
$29
Family support
$13
Advocacy and awareness
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$10,000
GENERAL SUPPORT
$8,705
MEDICAL RESEARCH
$100,000
$84,950
For grant recipient's exempt purposes
$29,000
Showing up to 5 of 69 total records — full history available with membership.
Officers & Directors
DIRECTOR
Ann Scheimann
DIRECTOR
Clint Hurdle
SECRETARY
Denise Servais
DIRECTOR
Jeffrey Covington
DIRECTOR
John Lens
DIRECTOR
Kathryn Lucero
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $3.0M | $2.7M | $3.6M |
| 2024 | $1.6M | $1.6M | $3.7M |
| 2023 | $1.6M | $1.8M | $2.8M |
| 2022 | $2.2M | $1.6M | $2.9M |
| 2021 | $1.7M | $1.2M | $2.4M |
Between 2021 and 2025, reported annual revenue grew from $1.7M to $3.0M (+75%), with total assets most recently reported at $3.6M.
Interactive year-over-year charts and full filing details available with membership.