Mission
TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.
Public Charity
CASTLEMAN DISEASE COLLABORATIVE NETWORK
CASTLEMAN DISEASE COLLABORATIVE NETWORK is a nonprofit organization categorized as Public Charity based in PASO ROBLES, CA. Its most recent IRS filing (2024) reports revenue of $979K, expenses of $961K, total assets of $3.0M. Imperigo tracks 33 reported grant relationships connected to this organization totaling approximately $1.9M.
EIN: 371510354
PASO ROBLES, CA
Fund Raising & Fund Distribution
NTEE: H12
Latest filing: 2024
Total Revenue$979K
Total Expenses$961K
Total Assets$3.0M
Grant Records33
Funding Total$1.9M
Filing Years2019–2024
Where $100 goes at Castleman Disease Collaborative Network
How Castleman Disease Collaborative Network divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$93
Programs
the work itself
$7
Management
running the organization
$0
Fundraising
none reported
No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.
Inside the $93 for programs
$93
In 2024, community contributions, large grants and fundraiser proceeds were received and used to help fund a castleman's disease educational conference held in december 2024 in san diego…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$78,620
HEALTH
$50,000
MEDICAL / PUBLIC SERVICES
$25,000
$16,750
CHARITABLE DONATION
$15,300
Showing up to 5 of 33 total records — full history available with membership.
Officers & Directors
Director
Bette Jacobs
Secretary
Charlyn Pacheco
President
David Fajgenbaum
Chairman
Greg Pacheco
Vice President
Jason Clark Diefenderfer
Director
Katherine Haeusel
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $979K | $961K | $3.0M |
| 2023 | $1.3M | $827K | $3.0M |
| 2022 | $899K | $443K | $2.5M |
| 2020 | $1.0M | $615K | $1.9M |
| 2019 | $1.2M | $603K | $1.5M |
Between 2019 and 2024, reported annual revenue declined from $1.2M to $979K (-17%), with total assets most recently reported at $3.0M.
Interactive year-over-year charts and full filing details available with membership.