Mission
TO EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS THROUGH EDUCATION, SUPPORT, AND RESEARCH.
Public Charity
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is a nonprofit organization categorized as Public Charity based in FAIRVIEW HEIGHTS, IL. Its most recent IRS filing (2024) reports revenue of $1.2M, expenses of $1.2M, total assets of $4.8M. Imperigo tracks 47 reported grant relationships connected to this organization totaling approximately $923K.
EIN: 371112496
FAIRVIEW HEIGHTS, IL
Latest filing: 2024
Total Revenue$1.2M
Total Expenses$1.2M
Total Assets$4.8M
Grant Records47
Funding Total$923K
Filing Years2020–2024
Sample Grants Received
GENERAL
$75,000
For grant recipient's exempt purposes
$43,700
GENERAL SUPPORT
$15,207
$14,250
MENTAL HEALTH IMPACT GRANT
$9,000
Showing up to 5 of 47 total records — full history available with membership.
Officers & Directors
VICE PRESIDENT
Anil Vora
DIRECTOR
Bill Wilkinson
DIRECTOR
Charles Richter
DIRECTOR
Jack Kriz
DIRECTOR
J Timothy Wright Dds Ms
PRESIDENT
Karl Nelsen
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.2M | $1.2M | $4.8M |
| 2023 | $1.2M | $1.1M | $4.5M |
| 2022 | $1.5M | $1.1M | $4.0M |
| 2021 | $2.0M | $885K | $4.3M |
| 2020 | $996K | $732K | $3.2M |
Between 2020 and 2024, reported annual revenue grew from $996K to $1.2M (+24%), with total assets most recently reported at $4.8M.
Interactive year-over-year charts and full filing details available with membership.