Mission
TO EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS THROUGH EDUCATION, SUPPORT, AND RESEARCH.
Public Charity
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is a nonprofit organization categorized as Public Charity based in FAIRVIEW HEIGHTS, IL. Its most recent IRS filing (2025) reports revenue of $1.6M, expenses of $1.6M, total assets of $5.0M. Imperigo tracks 49 reported grant relationships connected to this organization totaling approximately $1.0M.
EIN: 371112496
FAIRVIEW HEIGHTS, IL
Voluntary Health Associations & Medical Disciplines
NTEE: G
Latest filing: 2025
Total Revenue$1.6M
Total Expenses$1.6M
Total Assets$5.0M
Grant Records49
Funding Total$1.0M
Filing Years2021–2025
Sample Grants Received
GENERAL
$75,000
GENERAL
$75,000
For grant recipient's exempt purposes
$43,700
GENERAL SUPPORT
$15,207
$14,250
Showing up to 5 of 49 total records — full history available with membership.
Officers & Directors
VICE PRESIDENT
Anil Vora
DIRECTOR
Bill Wilkinson
DIRECTOR
Charles Richter
SECRETARY
Jack Kriz
DIRECTOR
Jeanne Wang
DIRECTOR
J Timothy Wright Dds Ms
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.6M | $1.6M | $5.0M |
| 2024 | $1.2M | $1.2M | $4.8M |
| 2023 | $1.2M | $1.1M | $4.5M |
| 2022 | $1.5M | $1.1M | $4.0M |
| 2021 | $2.0M | $885K | $4.3M |
Between 2021 and 2025, reported annual revenue declined from $2.0M to $1.6M (-16%), with total assets most recently reported at $5.0M.
Interactive year-over-year charts and full filing details available with membership.