Community Foundation

FOUNDATION FOR SARCOIDOSIS RESEARCH

FOUNDATION FOR SARCOIDOSIS RESEARCH is a Community Foundation headquartered in CHICAGO, IL. Financial data from the 2025 filing: $4.7M revenue, $3.8M expenses, $18.8M total assets. 60 publicly reported grants to this organization, totaling roughly $2.2M, appear in IRS filings.

EIN: 364378232 CHICAGO, IL Community Foundations NTEE: T31 Latest filing: 2025
Total Revenue$4.7M
Total Expenses$3.8M
Total Assets$18.8M
Grant Records60
Funding Total$2.2M
Filing Years2020–2025

Mission

THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS.

Where $100 goes at Foundation for Sarcoidosis Research

How Foundation for Sarcoidosis Research divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$76 Programs the work itself
$15 Management running the organization
$9 Fundraising raising the next dollar

Inside the $76 for programs

$41
Fsr research funding
54% of program spending · Reported in the filing: 7,500 participants
$29
Fsr global sarcoidosis clinic alliance (fsr-gsca) clinical support - comprised of 46 member institutions, the fsr-gsca is a powerful network of institutions that support patients, caregivers, and clinicians…
38% of program spending
$6
Fsr patient support and education
8% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

TREASURER Calvin Harris
DIRECTOR Craig Lipset
DIRECTOR OF OPERATIONS David Fischer
VP OF RESEARCH Elise Hoover
DIRECTOR Emerson Randy Hall Jr
DIRECTOR Jeffrey Raich

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,524,271 48 grants
Health & Medicine
$631,800 6 grants
Research & Policy
$25,000 1 grant
Unspecified
$43,100 4 grants

Financial Trends

Year Revenue Expenses Assets
2025 $4.7M $3.8M $18.8M
2024 $13.6M $3.4M $17.2M
2023 $2.6M $2.4M $5.7M
2022 $1.7M $2.0M $4.9M
2020 $1.8M $1.4M $5.2M

Between 2020 and 2025, reported annual revenue grew from $1.8M to $4.7M (+161%), with total assets most recently reported at $18.8M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for FOUNDATION FOR SARCOIDOSIS RESEARCH

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