Mission
OUR MISSION IS TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Public Charity
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is a Public Charity headquartered in SCHAUMBURG, IL. Financial data from the 2025 filing: $15.2M revenue, $14.0M expenses, $10.6M total assets. 114 publicly reported grants to this organization, totaling roughly $5.6M, appear in IRS filings.
EIN: 363320440
SCHAUMBURG, IL
Latest filing: 2025
Total Revenue$15.2M
Total Expenses$14.0M
Total Assets$10.6M
Grant Records114
Funding Total$5.6M
Filing Years2020–2025
Sample Grants Received
FUND CURE FOR SMA
$565,181
GENERAL SUPPORT
$105,789
MEDICAL / PUBLIC SERVICES
$100,725
GENERAL SUPPORT
$88,087
For grant recipient's exempt purposes
$85,850
Showing up to 5 of 114 total records — full history available with membership.
Officers & Directors
DIRECTOR
Allyson Henkel
DIRECTOR
Amy Medina
DIRECTOR
Bakri Elsheikh
TREASURER & VICE CHAIR
Bradley A Nunemaker
DIRECTOR
Brianna Gross
DIRECTOR
Brian Snyder
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $15.2M | $14.0M | $10.6M |
| 2024 | $14.8M | $15.6M | $10.7M |
| 2023 | $13.7M | $14.2M | $12.7M |
| 2021 | $10.4M | $10.1M | $10.2M |
| 2020 | $12.1M | $11.1M | $10.2M |
Between 2020 and 2025, reported annual revenue grew from $12.1M to $15.2M (+26%), with total assets most recently reported at $10.6M.
Interactive year-over-year charts and full filing details available with membership.