Mission
OUR MISSION IS TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Public Charity
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is a Public Charity headquartered in SCHAUMBURG, IL. Financial data from the 2025 filing: $15.2M revenue, $14.0M expenses, $10.6M total assets. 120 publicly reported grants to this organization, totaling roughly $6.5M, appear in IRS filings.
EIN: 363320440
SCHAUMBURG, IL
Single Organization Support
NTEE: G11
Latest filing: 2025
Total Revenue$15.2M
Total Expenses$14.0M
Total Assets$10.6M
Grant Records120
Funding Total$6.5M
Filing Years2020–2025
Where $100 goes at Families of Spinal Muscular Atrophy DBA Cure Sma
How Families of Spinal Muscular Atrophy DBA Cure Sma divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$80
Programs
the work itself
$8
Management
running the organization
$12
Fundraising
raising the next dollar
Inside the $80 for programs
$40
Cure sma focuses on three different yet equally critical and interdependent research areas: basic research, to understand the cause and biology of sma; drug discovery, to convert basic…
$36
Individuals with sma need specialized care and equipment, which can put enormous logistical and financial pressure on families
$4
We hosted the 2025 annual sma conference in anaheim, ca with over 2,739 registered attendees
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
FUND CURE FOR SMA
$450,181
GENERAL SUPPORT
$22,795
CHARITABLE GIVING
$11,400
FUND CURE FOR SMA
$565,181
FOR RECIPIENT'S EXEMPT PURPOSE
$268,000
Showing up to 5 of 120 total records — full history available with membership.
Officers & Directors
DIRECTOR
Allyson Henkel
DIRECTOR
Amy Medina
DIRECTOR
Bakri Elsheikh
TREASURER & VICE CHAIR
Bradley A Nunemaker
DIRECTOR
Brianna Gross
DIRECTOR
Brian Snyder
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $15.2M | $14.0M | $10.6M |
| 2024 | $14.8M | $15.6M | $10.7M |
| 2023 | $13.7M | $14.2M | $12.7M |
| 2021 | $10.4M | $10.1M | $10.2M |
| 2020 | $12.1M | $11.1M | $10.2M |
Between 2020 and 2025, reported annual revenue grew from $12.1M to $15.2M (+26%), with total assets most recently reported at $10.6M.
Interactive year-over-year charts and full filing details available with membership.