Public Charity

NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC

NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC is a nonprofit organization categorized as Public Charity based in FORT ATKINSON, WI. Its most recent IRS filing (2025) reports revenue of $929K, expenses of $553K, total assets of $981K. Imperigo tracks 15 reported grant relationships connected to this organization totaling approximately $222K.

EIN: 351844264 FORT ATKINSON, WI Single Organization Support NTEE: H11 Latest filing: 2025
Total Revenue$929K
Total Expenses$553K
Total Assets$981K
Grant Records15
Funding Total$222K
Filing Years2021–2025

Mission

THE NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC. (NNPDF) IS A NON-PROFIT, PATIENT ADVOCACY AND FAMILY SUPPORT ORGANIZATION DEDICATED TO SUPPORTING AND EMPOWERING PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE, THROUGH EDUCATION, COLLABORATION AND RESEARCH.

Where $100 goes at National Niemann-Pick Disease Foundation Inc

How National Niemann-Pick Disease Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$69 Programs the work itself
$25 Management running the organization
$6 Fundraising raising the next dollar

Inside the $69 for programs

$67
Family support
97% of program spending
$2
Research support
3% of program spending · Reported in the filing: 450 families
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Anthony Leoni
VICE CHAIR (THRU JUNE) Becky Mcguire
DIRECTOR Dawn Stites
DIRECTOR Deborah Cho
CHAIR Elizabeth Heinze
DIRECTOR Gail Koujaian

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$222,489 15 grants

Financial Trends

Year Revenue Expenses Assets
2025 $929K $553K $981K
2024 $676K $589K $607K
2023 $591K $797K $581K
2022 $557K $726K $699K
2021 $499K $479K $851K

Between 2021 and 2025, reported annual revenue grew from $499K to $929K (+86%), with total assets most recently reported at $981K.

Interactive year-over-year charts and full filing details available with membership.

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