Public Charity

UNITED LEUKODYSTROPHY FOUNDATION INC

UNITED LEUKODYSTROPHY FOUNDATION INC is a nonprofit organization categorized as Public Charity based in CHICAGO, IL. Its most recent IRS filing (2025) reports revenue of $518K, expenses of $483K, total assets of $1.7M. Imperigo tracks 17 reported grant relationships connected to this organization totaling approximately $299K.

EIN: 351557361 CHICAGO, IL Latest filing: 2025
Total Revenue$518K
Total Expenses$483K
Total Assets$1.7M
Grant Records17
Funding Total$299K
Filing Years2021–2025

Mission

The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Officers & Directors

Director Amber Freed
Executive Director Diane Fennimore
Treasurer Donna Skwirut
Director Dr Joseph Hacia
Vice President Dr Stephanie Keller
Director Gregory Huffer

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$183,620 7 grants
GENERAL SUPPORT
$47,255 4 grants
PROGRAMS
$25,000 1 grant
RESEARCH FUNDING
$15,000 1 grant
HEALTH
$10,150 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $518K $483K $1.7M
2024 $596K $553K $1.6M
2023 $730K $656K $1.5M
2022 $499K $558K $1.5M
2021 $663K $437K $1.6M

Between 2021 and 2025, reported annual revenue declined from $663K to $518K (-22%), with total assets most recently reported at $1.7M.

Interactive year-over-year charts and full filing details available with membership.

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