Mission
TO THOUGHTFULLY SUPPORT, COMPREHENSIVELY EDUCATE, AND AGGRESSIVELY SEEK THE BEST TREATMENTS AND A CURE FOR THOSE AFFECTED BY GORLIN SYNDROME.
Public Charity
GORLIN SYNDROME ALLIANCE
Based in AUSTIN, TX, GORLIN SYNDROME ALLIANCE operates as a Public Charity. The organization reported $490K in revenue, $430K in expenses, $670K in total assets for fiscal year 2024. Imperigo tracks 10 reported grant relationships connected to this organization totaling approximately $1.1M.
EIN: 341915691
AUSTIN, TX
Specifically Named Diseases
NTEE: G80
Latest filing: 2024
Total Revenue$490K
Total Expenses$430K
Total Assets$670K
Grant Records10
Funding Total$1.1M
Filing Years2019–2024
Where $100 goes at Gorlin Syndrome Alliance
How Gorlin Syndrome Alliance divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$73
Programs
the work itself
$14
Management
running the organization
$13
Fundraising
raising the next dollar
Inside the $73 for programs
$73
The Gorlin Syndrome Alliance (gsa) advances its mission through targeted program services designed to support patients and their families, while coalescing the broader community, including patients, scientists and…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$800,000
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
$210,000
For grant recipient's exempt purposes
$26,250
GENERAL SUPPORT
$10,000
UNRESTRICTED
$8,576
Showing up to 5 of 10 total records — full history available with membership.
Officers & Directors
DIRECTOR JOINED BOARD IN SEP.
Alix Alderman
TREASURER
Beth Spiegel
DIRECTOR
Dr Elena Hawryluk
DIRECTOR
Dr Jim Swift
DIRECTOR ROLLED OFF BOARD IN JUNE
Jenni Werkmeister
EXECUTIVE DIRECTOR
Julia Breneiser
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $490K | $430K | $670K |
| 2023 | $307K | $359K | $337K |
| 2022 | $503K | $302K | $391K |
| 2020 | $390K | $255K | $202K |
| 2019 | $263K | $296K | $32K |
Between 2019 and 2024, reported annual revenue grew from $263K to $490K (+86%), with total assets most recently reported at $670K.
Interactive year-over-year charts and full filing details available with membership.