Public Charity

GORLIN SYNDROME ALLIANCE

Based in AUSTIN, TX, GORLIN SYNDROME ALLIANCE operates as a Public Charity. The organization reported $490K in revenue, $430K in expenses, $670K in total assets for fiscal year 2024. Imperigo tracks 10 reported grant relationships connected to this organization totaling approximately $1.1M.

EIN: 341915691 AUSTIN, TX Latest filing: 2024
Total Revenue$490K
Total Expenses$430K
Total Assets$670K
Grant Records10
Funding Total$1.1M
Filing Years2019–2024

Mission

TO THOUGHTFULLY SUPPORT, COMPREHENSIVELY EDUCATE, AND AGGRESSIVELY SEEK THE BEST TREATMENTS AND A CURE FOR THOSE AFFECTED BY GORLIN SYNDROME.

Officers & Directors

DIRECTOR JOINED BOARD IN SEP. Alix Alderman
TREASURER Beth Spiegel
DIRECTOR Dr Elena Hawryluk
DIRECTOR Dr Jim Swift
DIRECTOR ROLLED OFF BOARD IN JUNE Jenni Werkmeister
EXECUTIVE DIRECTOR Julia Breneiser

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$800,000 1 grant
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
$210,000 1 grant
For grant recipient's exempt purposes
$26,250 1 grant
General Support
$20,000 1 grant
General support
$20,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $490K $430K $670K
2023 $307K $359K $337K
2022 $503K $302K $391K
2020 $390K $255K $202K
2019 $263K $296K $32K

Between 2019 and 2024, reported annual revenue grew from $263K to $490K (+86%), with total assets most recently reported at $670K.

Interactive year-over-year charts and full filing details available with membership.

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