Small Public Charity

GOULD SYNDROME FOUNDATION

GOULD SYNDROME FOUNDATION is a nonprofit organization categorized as Small Public Charity based in Hanford, CA. Its most recent IRS filing (2025) reports revenue of $73K, expenses of $8K, total assets of $66K.

EIN: 331807591 Hanford, CA Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2025

Total Revenue$73K

Total Expenses$8K

Total Assets$66K

Grant Records1

Filing Years2025

Mission

This corporation is organized exclusively for charitable, educational, or scientific purposes, including for such purposes, the making of distributions to organizations that qualify as exempt organizations under 501(c)(3) of the Internal Revenue Code, or the corresponding section of any future federal tax code. Without limiting the generality of the foregoing, the corporation intends to support causes that assist and support development of research and cure of Gould Syndrome caused by mutations of the COL41 and COL4A2 genes.

Where $100 goes at Gould Syndrome Foundation

How Gould Syndrome Foundation divides every $100 it spends, from its own Form 990-EZ filings.

$84 Programs the work itself

$16 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $84 for programs

$38

As a foundation, we launched our own website (1/1/25), which laid the foundation for building a support/research community around Gould Syndrome

45% of program spending

$33

During the year of 2025, we decided as a foundation to hold the first ever Gould Syndrome International Conference in America

39% of program spending

$13

As a foundation, we made a contribution to support the Collagen Gordon Research Conference

16% of program spending

Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

President Brittney Davison

Vice President Lacey Korstvedt

Secretary Michelle Theeuwes

Treasurer Timothy Roy

Officer compensation and complete director data available with membership.

Financial Trends

Year	Revenue	Expenses	Assets
2025	$73K	$8K	$66K

Interactive year-over-year charts and full filing details available with membership.

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