Mission
In our drive to find a cure for NBIA we provide support to families educate the public and accelerate research with collaborators from around the world.
Public Charity
NBIA Disorders Association
NBIA Disorders Association is a Public Charity headquartered in CYPRESS, TX. Financial data from the 2025 filing: $526K revenue, $431K expenses, $1.1M total assets. 16 publicly reported grants to this organization, totaling roughly $177K, appear in IRS filings.
EIN: 330712327
CYPRESS, TX
Latest filing: 2025
Total Revenue$526K
Total Expenses$431K
Total Assets$1.1M
Grant Records16
Funding Total$177K
Filing Years2021–2025
Sample Grants Received
GENERAL SUPPORT
$27,991
GENERAL SUPPORT
$18,330
For grant recipient's exempt purposes
$9,600
GENERAL SUPPORT
$15,195
$11,962
Showing up to 5 of 16 total records — full history available with membership.
Officers & Directors
President
Amber Denton
Treasurer
Carolyn Banik
Trustee
Dr James Bourgeois
Trustee
Jeffrey Gartman
Trustee
Jennifer Sanchez
Trustee
Jennifer Wildvank
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $526K | $431K | $1.1M |
| 2024 | $241K | $290K | $997K |
| 2023 | $532K | $428K | $918K |
| 2022 | $276K | $268K | $847K |
| 2021 | $565K | $285K | $786K |
Between 2021 and 2025, reported annual revenue declined from $565K to $526K (-7%), with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.