Mission
To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Public Charity
International Rett Syndrome Foundation
Based in Cincinnati, OH, International Rett Syndrome Foundation operates as a Public Charity. The organization reported $4.8M in revenue, $5.5M in expenses, $5.3M in total assets for fiscal year 2024. Imperigo tracks 95 reported grant relationships connected to this organization totaling approximately $3.7M.
EIN: 311682518
Cincinnati, OH
Latest filing: 2024
Total Revenue$4.8M
Total Expenses$5.5M
Total Assets$5.3M
Grant Records95
Funding Total$3.7M
Filing Years2020–2024
Sample Grants Received
GENERAL SUPPORT
$130,000
RETT SYNDROME RESEARCH
$16,840
GENERAL SUPPORT
$135,000
GENERAL SUPPORT
$121,805
For grant recipient's exempt purposes
$105,705
Showing up to 5 of 95 total records — full history available with membership.
Officers & Directors
Trustee
Alan Shukovsky
Chairman
David Pass Pharmd
VP of Clinical Development
Drew Jones
Founding Seat - Non Voting
Gordon Rich
Trustee
Jospeh Horrigan Md
Trustee
Laura Stoppel Phd
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $4.8M | $5.5M | $5.3M |
| 2023 | $4.9M | $3.7M | $6.3M |
| 2022 | $3.7M | $5.5M | $6.4M |
| 2021 | $4.1M | $4.1M | $7.4M |
| 2020 | $3.9M | $2.5M | $6.3M |
Between 2020 and 2024, reported annual revenue grew from $3.9M to $4.8M (+25%), with total assets most recently reported at $5.3M.
Interactive year-over-year charts and full filing details available with membership.