Public Charity

THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC

THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC is a nonprofit organization categorized as Public Charity based in WASHINGTON, DC. Its most recent IRS filing (2024) reports revenue of $14.3M, expenses of $12.9M, total assets of $12.6M. Imperigo tracks 115 reported grant relationships connected to this organization totaling approximately $10.4M.

EIN: 311405490 WASHINGTON, DC Latest filing: 2024
Total Revenue$14.3M
Total Expenses$12.9M
Total Assets$12.6M
Grant Records115
Funding Total$10.4M
Filing Years2019–2024

Mission

THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.

Sample Grants Received

2025
TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
$50,000
$1,750,125
$280,000
2024
For grant recipient's exempt purposes
$206,287
$89,191

Showing up to 5 of 115 total records — full history available with membership.

Officers & Directors

VICE CHAIR Alpa Khushalani
VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. Ann Martin
DIRECTOR Colin Rensch
EXECUTIVE COMMITTEE David N Hofstein
TREASURER Dawn Rezkalla
SECRETARY Deanne Friar

Officer compensation and complete director data available with membership.

Top Grant Purposes

HUMAN SERVICES
$4,558,360 9 grants
GENERAL SUPPORT
$2,059,731 19 grants
For grant recipient's exempt purposes
$1,546,711 9 grants
PROGRAMS
$337,250 3 grants
MEDICAL RESEARCH
$212,500 3 grants

Financial Trends

Year Revenue Expenses Assets
2024 $14.3M $12.9M $12.6M
2023 $13.9M $12.1M $10.4M
2022 $10.8M $11.0M $8.6M
2020 $9.6M $7.9M $7.1M
2019 $11.4M $10.9M $4.7M

Between 2019 and 2024, reported annual revenue grew from $11.4M to $14.3M (+25%), with total assets most recently reported at $12.6M.

Interactive year-over-year charts and full filing details available with membership.

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