Small Public Charity

Spina Bifida Association of Kentucky Inc

Spina Bifida Association of Kentucky Inc is a nonprofit organization categorized as Small Public Charity based in LOUISVILLE, KY. Its most recent IRS filing (2025) reports revenue of $181K, expenses of $175K, total assets of $174K. Imperigo tracks 20 reported grant relationships connected to this organization totaling approximately $324K.

EIN: 311081176 LOUISVILLE, KY Voluntary Health Associations & Medical Disciplines NTEE: G Latest filing: 2025
Total Revenue$181K
Total Expenses$175K
Total Assets$174K
Grant Records20
Funding Total$324K
Filing Years2021–2025

Mission

Our mission is to build a better future for all those impacted by Spina Bifida. The Spina Bifida Association of Kentucky achieves this mission by providing FREE educational social and financial programs for those with Spina Bifida in Kentucky and Southern Indiana. Spina Bifida is a permanently disabling birth defect that presents lifelong physical and emotional challenges but with proper medical intervention those with Spina Bifida can live a full and productive life.

Where $100 goes at Spina Bifida Association of Kentucky Inc

How Spina Bifida Association of Kentucky Inc divides every $100 it spends, from its own Form 990-EZ filings, averaged across 9 years.

$68 Programs the work itself
$32 Everything else operations and overhead

Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.

Inside the $68 for programs

$43
CHILDRENS PROGRAMS From newborn to teen providing social and educational programming to help kids with Spina Bifida and their parents guardians learn to navigate their ever-changing world
63% of program spending
$14
MULTIGENERATIONAL PROGRAMS Programming for all those with Spina Bifida and their families
21% of program spending
$11
SPINA BIFIDA FAMILY CAMP annual 3-day weekend at the Center for Courageous Kids in Scottsville KY
16% of program spending · Reported in the filing: 32 families
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Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Andy Root
DIRECTOR Elizabeth Bryant
DIRECTOR Jonathan Evans
BOARD OF DIRECTORS SECRETARY Knanisha Griggs
DIRECTOR Matt Davis
DIRECTOR Michael Carvelli

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$195,321 13 grants
Health & Medicine
$64,950 2 grants
Youth Development
$33,750 2 grants
Education
$30,000 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $181K $175K $174K
2024 $192K $176K $170K
2023 $217K $228K $172K
2022 $278K $198K $217K
2021 $221K $209K $124K

Between 2021 and 2025, reported annual revenue declined from $221K to $181K (-18%), with total assets most recently reported at $174K.

Interactive year-over-year charts and full filing details available with membership.

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