Public Charity

CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND

CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND is a Public Charity headquartered in Lexington, KY. Financial data from the 2024 filing: $258K revenue, $679K expenses, $360K total assets. 12 publicly reported grants to this organization, totaling roughly $527K, appear in IRS filings.

EIN: 271008382 Lexington, KY Latest filing: 2024
Total Revenue$258K
Total Expenses$679K
Total Assets$360K
Grant Records12
Funding Total$527K
Filing Years2017–2024

Mission

The mission of Chelsea's Hope is to improve the lives of those affected by Lafora disease and to help accelerate the development of treatments. We do this by raising awareness, hosting educational events, and supporting research efforts for Lafora disease.

Officers & Directors

President Frank Harris
Vice President Jenifer Merriam
Finance Director & Executive Director (Top Management) Katherine Donohue
Executive Director (Top Management) Lena Ismail
Secretary Meredith Williams
At-Large Member, Board of Directors Nadia Ismail

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health
$400,000 2 grants
GENERAL SUPPORT
$66,384 3 grants
UNRESTRICTED
$28,796 2 grants
Unrestricted
$11,138 2 grants
For grant recipient's exempt purposes
$10,100 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $258K $679K $360K
2023 $280K $198K $782K
2022 $652K $265K $658K
2021 $260K $36K $272K
2017 $46K $55K $52K

Between 2017 and 2024, reported annual revenue grew from $46K to $258K (+458%), with total assets most recently reported at $360K.

Interactive year-over-year charts and full filing details available with membership.

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