Mission
To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
Public Charity
International Foundation For CDKL5 Research
International Foundation For CDKL5 Research, of Wadsworth, OH, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $716K in revenue, $357K in expenses, $977K in total assets. IRS filings disclose 46 grants awarded by this foundation, totaling roughly $2.9M.
EIN: 270950477
Wadsworth, OH
Public Foundations
NTEE: T30
Latest filing: 2024
Total Revenue$716K
Total Expenses$357K
Total Assets$977K
Grants Given46
Grant Total$2.9M
Filing Years2019–2024
Sample Grants Given
Research
$55,874
Research
$50,000
$30,000
$13,400
$72,884
Showing up to 5 of 46 total records — full history available with membership.
Officers & Directors
Treasurer
Amanda Jaksha
Director
Garrett Decker
President
Karen Utley
Director
Marissa Bishop
Board Member Emeritus
Melissa Ralston
Director
Miriam Churgin
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $716K | $357K | $977K |
| 2023 | $639K | $415K | $761K |
| 2022 | $607K | $726K | $631K |
| 2020 | $635K | $700K | $415K |
| 2019 | $463K | $720K | $329K |
Between 2019 and 2024, reported annual revenue grew from $463K to $716K (+55%), with total assets most recently reported at $977K.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in CA, CO, IN, MA, MD, ME, and 4 other states.
CACOINMAMDMEMONENYOH
Full geographic grant map with state-by-state breakdown available with membership.