Mission
To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
Public Charity
International Foundation For CDKL5 Research
International Foundation For CDKL5 Research, of Wadsworth, OH, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $716K in revenue, $357K in expenses, $977K in total assets. 18 publicly reported grants to this organization, totaling roughly $210K, appear in IRS filings.
EIN: 270950477
Wadsworth, OH
Latest filing: 2024
Total Revenue$716K
Total Expenses$357K
Total Assets$977K
Grant Records18
Funding Total$210K
Filing Years2019–2024
Sample Grants Received
PUBLIC, SOCIETAL BENEFIT
$15,250
GENERAL SUPPORT
$12,646
GENERAL SUPPORT
$10,033
$23,272
$15,000
Showing up to 5 of 18 total records — full history available with membership.
Officers & Directors
Treasurer
Amanda Jaksha
Director
Garrett Decker
President
Karen Utley
Director
Marissa Bishop
Board Member Emeritus
Melissa Ralston
Director
Miriam Churgin
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $716K | $357K | $977K |
| 2023 | $639K | $415K | $761K |
| 2022 | $607K | $726K | $631K |
| 2020 | $635K | $700K | $415K |
| 2019 | $463K | $720K | $329K |
Between 2019 and 2024, reported annual revenue grew from $463K to $716K (+55%), with total assets most recently reported at $977K.
Interactive year-over-year charts and full filing details available with membership.