Public Charity

DRAVET SYNDROME FOUNDATION INC

DRAVET SYNDROME FOUNDATION INC, of Cherry Hill, NJ, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $4.2M in revenue, $4.3M in expenses, $8.5M in total assets. 47 publicly reported grants to this organization, totaling roughly $1.8M, appear in IRS filings.

EIN: 270924627 Cherry Hill, NJ Latest filing: 2024
Total Revenue$4.2M
Total Expenses$4.3M
Total Assets$8.5M
Grant Records47
Funding Total$1.8M
Filing Years2020–2024

Mission

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

Officers & Directors

Trustee Amanda Prather
Trustee Ashley Kerns
Trustee Bill Kirshner
Secretary Claire Carey
Trustee Gail Farfel
Finance & Program Director Jamie Cohen

Officer compensation and complete director data available with membership.

Top Grant Purposes

CHARITABLE CONTR.
$589,631 2 grants
For grant recipient's exempt purposes
$484,525 9 grants
GENERAL SUPPORT
$324,518 15 grants
PUBLIC, SOCIETAL BENEFIT
$172,180 5 grants
HUMAN SERVICES
$39,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $4.2M $4.3M $8.5M
2023 $3.3M $2.2M $7.5M
2022 $2.5M $2.0M $6.2M
2021 $2.2M $1.3M $5.9M
2020 $2.0M $922K $4.9M

Between 2020 and 2024, reported annual revenue grew from $2.0M to $4.2M (+115%), with total assets most recently reported at $8.5M.

Interactive year-over-year charts and full filing details available with membership.

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