Mission
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Public Charity
Wake Up Narcolepsy Inc
Wake Up Narcolepsy Inc is a Public Charity headquartered in Worcester, MA. Financial data from the 2024 filing: $1.4M revenue, $1.4M expenses, $619K total assets. 26 publicly reported grants to this organization, totaling roughly $632K, appear in IRS filings.
EIN: 263768711
Worcester, MA
Specifically Named Diseases
NTEE: G80
Latest filing: 2024
Total Revenue$1.4M
Total Expenses$1.4M
Total Assets$619K
Grant Records26
Funding Total$632K
Filing Years2019–2024
Where $100 goes at Wake Up Narcolepsy Inc
How Wake Up Narcolepsy Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$68
Programs
the work itself
$8
Management
running the organization
$24
Fundraising
raising the next dollar
Inside the $68 for programs
$46
Increasing awareness of Narcolepsy.Decreasing time-lapse from symptom onset to proper diagnosis.Providing supportive resources for people with Narcolepsy and their families
$22
Provide funding to accelerate a cure for Narcolepsy
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
CHARITABLE DONATION
$17,700
GENERAL SUPPORT
$16,825
FOR RECIPIENT'S EXEMPT PURPOSE
$10,000
CV health and sleep initiative
$7,500
MEDICAL RESEARCH
$5,316
Showing up to 5 of 26 total records — full history available with membership.
Officers & Directors
Director
Anne Samarawickrama
Director
David Gow
Emeritus
Gordon Gow
Director
Gregg Levethan
Director
Kelsey Biddle
Treasurer
Kevin Guckian
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.4M | $1.4M | $619K |
| 2023 | $768K | $772K | $622K |
| 2022 | $535K | $499K | $642K |
| 2020 | $454K | $290K | $436K |
| 2019 | $373K | $452K | $260K |
Between 2019 and 2024, reported annual revenue grew from $373K to $1.4M (+267%), with total assets most recently reported at $619K.
Interactive year-over-year charts and full filing details available with membership.