Mission
TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTH
Public Charity
FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW
FAMILIAL DYSAUTONOMIA NOW FOUNDATION FD NOW, of Buffalo Grove, IL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $289K in revenue, $234K in expenses, $1.1M in total assets. 26 publicly reported grants to this organization, totaling roughly $481K, appear in IRS filings.
EIN: 263531031
Buffalo Grove, IL
Single Organization Support
NTEE: H11
Latest filing: 2025
Total Revenue$289K
Total Expenses$234K
Total Assets$1.1M
Grant Records26
Funding Total$481K
Filing Years2021–2025
Where $100 goes at Familial Dysautonomia Now Foundation FD Now
How Familial Dysautonomia Now Foundation FD Now divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$83
Programs
the work itself
$8
Management
running the organization
$9
Fundraising
raising the next dollar
Inside the $83 for programs
$83
To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic neurological disease present at birth
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL PURPOSES
$25,000
GENERAL PURPOSES
$25,000
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
$18,604
For grant recipient's exempt purposes
$6,182
CHARITABLE SUPPORT. ANY RESTRICTIONS HAVE BEEN COMMUNICATED TO THE GRANTEE.
$5,200
Showing up to 5 of 26 total records — full history available with membership.
Officers & Directors
TREASURER
Andrea Greenfield
PRESIDENT
Ann Slaw Jd
fl regional representative
Carol Alterman Rn
VICE PRESIDENT
Ken Slaw Phd
advisory board
Pat White
ADVISORY BOARD
Ruth Woodruff Jd
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $289K | $234K | $1.1M |
| 2024 | $299K | $235K | $1.1M |
| 2023 | $364K | $227K | $1.0M |
| 2022 | $293K | $226K | $882K |
| 2021 | $231K | $203K | $812K |
Between 2021 and 2025, reported annual revenue grew from $231K to $289K (+25%), with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.