Mission
TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
Public Charity
BEYOND BATTEN DISEASE FOUNDATION
BEYOND BATTEN DISEASE FOUNDATION, of AUSTIN, TX, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $306K in revenue, $893K in expenses, $1.9M in total assets. 38 publicly reported grants to this organization, totaling roughly $610K, appear in IRS filings.
EIN: 263223661
AUSTIN, TX
Educational Services
NTEE: B90
Latest filing: 2025
Total Revenue$306K
Total Expenses$893K
Total Assets$1.9M
Grant Records38
Funding Total$610K
Filing Years2021–2025
Where $100 goes at Beyond Batten Disease Foundation
How Beyond Batten Disease Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$73
Programs
the work itself
$19
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $73 for programs
$73
To accelerate the discovery and development of medicines to prevent, treat and cure juvenile batten disease
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$14,849
For grant recipient's exempt purposes
$12,200
GENERAL SUPPORT
$10,833
GENERAL SUPPORT
$10,833
HEALTH
$7,000
Showing up to 5 of 38 total records — full history available with membership.
Officers & Directors
DIRECTOR
Caroline Goodner
DIRECTOR
Jeff Hunt
DIRECTOR
Jonathan Feifs
DIRECTOR EMERITUS
Mark Chandler
PRESIDENT/CEO AND SECRETARY
Mary Beth Kiser
DIRECTOR
Sabrina Brown
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $306K | $893K | $1.9M |
| 2024 | $538K | $1.1M | $2.1M |
| 2023 | $1.0M | $1.0M | $3.2M |
| 2022 | $1.2M | $1.2M | $3.6M |
| 2021 | $908K | $665K | $3.8M |
Between 2021 and 2025, reported annual revenue declined from $908K to $306K (-66%), with total assets most recently reported at $1.9M.
Interactive year-over-year charts and full filing details available with membership.