Public Charity

NATIONAL PKU ALLIANCE INC

Based in ROANOKE, VA, NATIONAL PKU ALLIANCE INC operates as a Public Charity. The organization reported $2.7M in revenue, $2.0M in expenses, $6.2M in total assets for fiscal year 2025. Imperigo tracks 71 reported grant relationships connected to this organization totaling approximately $4.1M.

EIN: 262849140 ROANOKE, VA Latest filing: 2025
Total Revenue$2.7M
Total Expenses$2.0M
Total Assets$6.2M
Grant Records71
Funding Total$4.1M
Filing Years2021–2025

Mission

OUR MISSION IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH PKU, PURSUE A CURE BY EXPANDING RESEARCH AND PROVIDE EDUCATION AND SUPPORT TO INDIVIDUALS LIVING WITH PKU AND THEIR CAREGIVERS.

Officers & Directors

DIRECTOR Adam Sherman
SECRETARY Alison Reynolds
EXECUTIVE DIRECTOR Catherine Warren
DIRECTOR Charles Bucklar
DIRECTOR Christina Love
TREASURER Dan Lazzari

Officer compensation and complete director data available with membership.

Top Grant Purposes

PKU EDUCATION AND RESEARCH PROJECT
$1,980,000 5 grants
PKU Education and Research Project
$700,000 1 grant
For grant recipient's exempt purposes
$397,700 9 grants
GENERAL SUPPORT
$176,929 12 grants
HEALTH
$139,500 8 grants

Financial Trends

Year Revenue Expenses Assets
2025 $2.7M $2.0M $6.2M
2024 $2.6M $2.1M $5.3M
2023 $1.3M $1.9M $4.8M
2022 $2.2M $1.8M $5.0M
2021 $1.9M $1.4M $5.3M

Between 2021 and 2025, reported annual revenue grew from $1.9M to $2.7M (+41%), with total assets most recently reported at $6.2M.

Interactive year-over-year charts and full filing details available with membership.

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