Mission
THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.
Public Charity
RETT SYNDROME RESEARCH TRUST INC
RETT SYNDROME RESEARCH TRUST INC, of TRUMBULL, CT, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $8.7M in revenue, $8.2M in expenses, $20.8M in total assets. 138 publicly reported grants to this organization, totaling roughly $7.7M, appear in IRS filings.
EIN: 260687439
TRUMBULL, CT
Latest filing: 2025
Total Revenue$8.7M
Total Expenses$8.2M
Total Assets$20.8M
Grant Records138
Funding Total$7.7M
Filing Years2021–2025
Sample Grants Received
RETT SYNDROME RESEARCH
$35,040
For grant recipient's exempt purposes
$295,795
ENVIRONMENT, ANIMALS
$194,300
$112,755
GENERAL SUPPORT
$104,139
Showing up to 5 of 138 total records — full history available with membership.
Officers & Directors
TRUSTEE
Adrian Bird
TRUSTEE
Alba Tull
TRUSTEE
Amy Gilliand
CHAIRMAN
Anthony P Schoener
TRUSTEE
Brad Zelinger
TRUSTEE
Brian Whitmer
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $8.7M | $8.2M | $20.8M |
| 2024 | $9.3M | $11.7M | $20.4M |
| 2023 | $8.5M | $12.3M | $18.5M |
| 2022 | $7.1M | $4.0M | $14.9M |
| 2021 | $8.1M | $4.7M | $13.6M |
Between 2021 and 2025, reported annual revenue grew from $8.1M to $8.7M (+7%), with total assets most recently reported at $20.8M.
Interactive year-over-year charts and full filing details available with membership.