Mission
SEE SCHEDULE O COMMENT.
Public Charity
HEREDITARY ANGIOEDEMA ASSOCIATION INC
HEREDITARY ANGIOEDEMA ASSOCIATION INC is a Public Charity headquartered in Fairfax, VA. Financial data from the 2024 filing: $10.0M revenue, $5.5M expenses, $21.9M total assets. 7 publicly reported grants to this organization, totaling roughly $88K, appear in IRS filings.
EIN: 251852548
Fairfax, VA
Health Care N.E.C.
NTEE: E99
Latest filing: 2024
Total Revenue$10.0M
Total Expenses$5.5M
Total Assets$21.9M
Grant Records7
Funding Total$88K
Filing Years2019–2024
Where $100 goes at Hereditary Angioedema Association Inc
How Hereditary Angioedema Association Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$92
Programs
the work itself
$6
Management
running the organization
$2
Fundraising
raising the next dollar
Inside the $92 for programs
$92
The hae associations overall objective is to save lives and raise the quality of life for patients with the rare, debilitating, and potentially fatal rare disease hereditary angeodema
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL OPERATIONAL SUPPORT
$9,000
Program Support
$7,500
GENERAL OPERATIONAL SUPPORT
$18,000
GENERAL OPERATIONAL SUPPORT
$9,000
GENERAL OPERATIONAL SUPPORT
$9,000
Showing up to 5 of 7 total records — full history available with membership.
Officers & Directors
CHAIRCHIEF EXECUTIVE OFFICER
Anthony Castaldo
SENIOR DIRECTOR HEALTH & RESEARCH
Christine Selva
DIRECTOR
Dr Eric Phillips
PRESIDENT
Henrik Balle Boysen
DIRECTOR
Karen Baird
DIRECTOR
Larry Salus
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $10.0M | $5.5M | $21.9M |
| 2023 | $10.2M | $7.2M | $16.4M |
| 2022 | $7.9M | $4.8M | $12.0M |
| 2020 | $6.2M | $4.4M | $7.0M |
| 2019 | $7.0M | $6.2M | $5.5M |
Between 2019 and 2024, reported annual revenue grew from $7.0M to $10.0M (+42%), with total assets most recently reported at $21.9M.
Interactive year-over-year charts and full filing details available with membership.