Public Charity

HUNTINGTON'S DISEASE FOUNDATION

Based in NEW YORK, NY, HUNTINGTON'S DISEASE FOUNDATION operates as a Public Charity. The organization reported $4.1M in revenue, $4.3M in expenses, $23.1M in total assets for fiscal year 2025. Imperigo tracks 38 reported grant relationships connected to this organization totaling approximately $4.1M.

EIN: 237376197 NEW YORK, NY Birth Defects & Genetic Diseases Research NTEE: H20 Latest filing: 2025
Total Revenue$4.1M
Total Expenses$4.3M
Total Assets$23.1M
Grant Records38
Funding Total$4.1M
Filing Years2021–2025

Mission

TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.

Where $100 goes at Huntington's Disease Foundation

How Huntington's Disease Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$84 Programs the work itself
$8 Management running the organization
$8 Fundraising raising the next dollar

Inside the $84 for programs

$84
Huntington'S Disease Foundation (hdf) advances paradigm-changing huntington's disease (hd) research through a collaborative approach to scientific discovery
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

SECRETARY Alice Wexler Phd
VICE CHAIR Anne B Young Md Phd
DIRECTOR Berta A Gehry
TREASURER Bruce Donaldson
DIRECTOR C Frank Bennett Phd
DIRECTOR David Housman Phd

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$3,985,901 28 grants
Health & Medicine
$143,350 8 grants
Human & Social Services
$100 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $4.1M $4.3M $23.1M
2024 $7.9M $4.5M $22.0M
2023 $2.6M $4.7M $18.2M
2022 $4.5M $2.6M $16.8M
2021 $3.8M $3.0M $18.1M

Between 2021 and 2025, reported annual revenue grew from $3.8M to $4.1M (+6%), with total assets most recently reported at $23.1M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for HUNTINGTON'S DISEASE FOUNDATION

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