OSTEOGENESIS IMPERFECTA FOUNDATION, of GAITHERSBURG, MD, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $2.6M in revenue, $2.6M in expenses, $1.7M in total assets. 54 publicly reported grants to this organization, totaling roughly $932K, appear in IRS filings.
OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.
How Osteogenesis Imperfecta Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Showing up to 5 of 54 total records — full history available with membership.
Officer compensation and complete director data available with membership.
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $2.6M | $2.6M | $1.7M |
| 2024 | $2.3M | $2.5M | $2.1M |
| 2023 | $2.2M | $2.1M | $2.3M |
| 2022 | $2.1M | $2.3M | $2.1M |
| 2021 | $1.9M | $1.6M | $2.2M |
Between 2021 and 2025, reported annual revenue grew from $1.9M to $2.6M (+37%), with total assets most recently reported at $1.7M.
Interactive year-over-year charts and full filing details available with membership.
