Public Charity

Illinois Spina Bifida Association

Illinois Spina Bifida Association, of Chicago, IL, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $268K in revenue, $309K in expenses, $348K in total assets. 24 publicly reported grants to this organization, totaling roughly $395K, appear in IRS filings.

EIN: 237062317 Chicago, IL Voluntary Health Associations & Medical Disciplines NTEE: G Latest filing: 2024
Total Revenue$268K
Total Expenses$309K
Total Assets$348K
Grant Records24
Funding Total$395K
Filing Years2020–2024

Mission

An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.

Where $100 goes at Illinois Spina Bifida Association

How Illinois Spina Bifida Association divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$70 Programs the work itself
$18 Management running the organization
$12 Fundraising raising the next dollar

Inside the $70 for programs

$28
Promote Skills Development and Independence
39% of program spending · Reported in the filing: 79 children; 137 children
$24
Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual…
35% of program spending · Reported in the filing: 1,000 people
$18
Invest in People Through Targeted Financial Assistance
26% of program spending
Share on LinkedIn Share on Facebook
Add this to your website

Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Vice Chair Blanca Jara
Director Chris Byrne
Director Derek Snyder
Director Erika Holliday
Treasurer James Marks
Director resigned 2024 Jessica Barclay

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$372,029 19 grants
Health & Medicine
$17,750 3 grants
Youth Development
$4,870 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $268K $309K $348K
2023 $269K $295K $386K
2022 $282K $255K $401K
2021 $266K $247K $385K
2020 $232K $264K $383K

Between 2020 and 2024, reported annual revenue grew from $232K to $268K (+16%), with total assets most recently reported at $348K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for Illinois Spina Bifida Association

Complete financials, all 24 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time