Mission
THE BARTH SYNDROME FOUNDATION IS AN ENGAGED, GLOBAL COMMUNITY WHOSE MISSION IS SAVING LIVES THROUGH EDUCATION, ADVANCES IN TREATMENTS, AND FINDING A CURE FOR BARTH SYNDROME.
Public Charity
THE BARTH SYNDROME FOUNDATION
Based in LARCHMONT, NY, THE BARTH SYNDROME FOUNDATION operates as a Public Charity. The organization reported $1.9M in revenue, $2.1M in expenses, $5.6M in total assets for fiscal year 2024. Imperigo tracks 32 reported grants from this foundation totaling approximately $1.7M.
EIN: 223755704
LARCHMONT, NY
Public Foundations
NTEE: T30
Latest filing: 2024
Total Revenue$1.9M
Total Expenses$2.1M
Total Assets$5.6M
Grants Given32
Grant Total$1.7M
Filing Years2020–2024
Sample Grants Given
CARDIAC AND SKELETAL MUSCLE MYOFILAMENT ACTIVATORS FOR THE TREATMENT OF BARTH SYNDROME
$99,519
MECHANISM OF CARDIOLIPIN REMODELING BY TAFAZZIN
$75,000
INVESTIGATING THE MOLECULAR BASIS FOR THE IMPAIRED MITOCHONDRIAL DYNAMICS IN BARTH SYNDROME
$40,000
ARRHYTHMIA PROJECT
$21,227
BOSTON CHILDREN'S HOSPITAL
OPTIMIZATION OF BARTH SYNDROME GENE THERAPY
$69,300
Showing up to 5 of 32 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Andrew Buddemeyer Term 24
SECRETARY
Brandi Dague
BOARD MEMBER
Bruce Develle
EXECUTIVE DIRECTOR
Emily Milligan
BOARD MEMBER
Florence Mannes Term 24
VICE CHAIR
James Baffa
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.9M | $2.1M | $5.6M |
| 2023 | $1.3M | $1.4M | $5.5M |
| 2022 | $1.4M | $1.4M | $5.4M |
| 2021 | $1.6M | $1.0M | $6.0M |
| 2020 | $1.3M | $1.0M | $5.6M |
Between 2020 and 2024, reported annual revenue grew from $1.3M to $1.9M (+53%), with total assets most recently reported at $5.6M.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in AL, CA, CO, CT, FL, MA, and 4 other states.
ALCACOCTFLMAMIMONCNY
Full geographic grant map with state-by-state breakdown available with membership.