Public Charity

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION, of UNION, NJ, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $1.2M in revenue, $1.1M in expenses, $1.1M in total assets. 34 publicly reported grants to this organization, totaling roughly $720K, appear in IRS filings.

EIN: 223755684 UNION, NJ Single Organization Support NTEE: G11 Latest filing: 2025
Total Revenue$1.2M
Total Expenses$1.1M
Total Assets$1.1M
Grant Records34
Funding Total$720K
Filing Years2021–2025

Mission

CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.

Where $100 goes at Congenital Adrenal Hyperplasia Research Education and Support Foundation

How Congenital Adrenal Hyperplasia Research Education and Support Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$84 Programs the work itself
$10 Management running the organization
$6 Fundraising raising the next dollar

Inside the $84 for programs

$24
Research/CCC
28% of program spending
$17
Family support & education provides educational materials and information for living with the daily challenges of congenital adrenal hyperplasia (cah)
19% of program spending
$15
Warmline support provides individuals and parents of children with cah a one-on-one source of information and support, which includes physician and resource referrals, via telephone, email and mail
18% of program spending

Plus 7 more programs. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Trustee Alan Macy
IMM PAST CHAIR Alexandra Dubois
Trustee Anne Neumann
DIRECTOR FINANCE Beatriz Pereira
Treasurer Brian Stair
Trustee Carlos Dasilva

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$458,114 26 grants
Health & Medicine
$261,850 7 grants

Financial Trends

Year Revenue Expenses Assets
2025 $1.2M $1.1M $1.1M
2024 $1.2M $1.1M $969K
2023 $954K $915K $906K
2022 $894K $818K $754K
2021 $792K $566K $541K

Between 2021 and 2025, reported annual revenue grew from $792K to $1.2M (+52%), with total assets most recently reported at $1.1M.

Interactive year-over-year charts and full filing details available with membership.

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