Public Charity

MASSACHUSETTS DOWN SYNDROME CONGRESS INC

MASSACHUSETTS DOWN SYNDROME CONGRESS INC, of BURLINGTON, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $4.8M in revenue, $2.6M in expenses, $7.4M in total assets. 62 publicly reported grants to this organization, totaling roughly $4.7M, appear in IRS filings.

EIN: 222596246 BURLINGTON, MA Latest filing: 2025
Total Revenue$4.8M
Total Expenses$2.6M
Total Assets$7.4M
Grant Records62
Funding Total$4.7M
Filing Years2021–2025

Mission

TO ENSURE INDIVIDUALS WITH DOWN SYNDROME IN MASSACHUSETTS ARE VALUED, INCLUDED, AND GIVEN THE OPPORTUNITIES TO PURSUE FULFILLING LIVES BY PROVIDING INFORMATION, NETWORKING OPPORTUNITIES, AND ADVOCACY FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES, EDUCATORS, HEALTH CARE PROFESSIONALS, AND THE COMMUNITY-AT-LARGE.

Where $100 goes at Massachusetts Down Syndrome Congress Inc

How Massachusetts Down Syndrome Congress Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$84 Programs the work itself
$9 Management running the organization
$7 Fundraising raising the next dollar

Inside the $84 for programs

$60
The mdsc advances the understanding of down syndrome through implementing public awareness initiatives that lead to systemic changes that enhance the ability for all individuals with down syndrome…
71% of program spending · Reported in the filing: 6,900 people
$24
The mdsc provides networking, social/friendship opportunities, and direct supports for all people with down syndrome and their families across massachusetts
29% of program spending · Reported in the filing: 4,800 individuals
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Adam Delmolino
DIRECTOR Clare Gillan Huang
DIRECTOR David Granfors
DIRECTOR Drew Keller
DIRECTOR Francisco Zamudio
CHAIR OF AUDIT AND FINANCE James Molla

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$4,376,673 45 grants
Health & Medicine
$74,246 8 grants
Food Assistance & Nutrition
$35,000 3 grants
Education
$25,000 1 grant
Unspecified
$178,863 4 grants

Financial Trends

Year Revenue Expenses Assets
2025 $4.8M $2.6M $7.4M
2024 $2.1M $2.5M $4.9M
2023 $2.1M $2.2M $5.2M
2022 $4.3M $1.8M $4.7M
2021 $1.9M $1.5M $2.3M

Between 2021 and 2025, reported annual revenue grew from $1.9M to $4.8M (+152%), with total assets most recently reported at $7.4M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for MASSACHUSETTS DOWN SYNDROME CONGRESS INC

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